Patient Organizations


Urtikariaverband – Patientenorganisation für Nesselsucht

The Urticaria Association is a social profit organization. They promote health and make an indispensable contribution to our society by networking, advising and informing urticaria patients. They cooperate with doctors, healthcare facilities and patient organizations worldwide. They do not pursue any self-serving, profit-oriented goals. They are preparing the way for a future worth living with urticaria. Information platform with urticaria sufferers’ group on Facebook. Founded by Sabine Bauer and Kathrin Kühne in 2012 with the aim of providing other sufferers with information and sharing experiences so that they can find the right therapy for them more quickly. Today, the group has almost 2,600 members and is a comprehensive information platform about the forms, symptoms and treatment options of urticaria. The two founders are supported by the experienced dermatologists and allergists Prof. Dr. Staubach-Renz from the University Hospital in Mainz and Prof. Dr. Maurer from the Charité Hospital in Berlin.

Urtikaria Netzwerk Berlin Brandenburg

An association of dermatologistst from Berlin and Brandenburg that was founded in 2015. The aim of the network is to improve the care of urticaria patients in Berlin and Brandenburg by promoting intra- and interdisciplinary cooperation between the members providing care for urticaria patients in matters of clinical and care research as well as in education, training and continuing education.

United Kingdom

Allergy UK

Allergy Uk´s aim is to raise the profile of allergy at all levels, with a vision for everyone affected by allergy to receive the best possible care and support. They run a dedicated Helpline and offer free Factsheets that provide information that is often badly needed to explain the symptoms and triggers that people with allergy are dealing with every day of their lives. The charity works with government, professional bodies, healthcare professionals and corporates to help improve the lives of the millions of people with allergic disease.


Asociación de Afectados de Urticaria Crónica


Associação Portuguesa de Doentes de Urticária (APURTICA)

Patient Organization committed to represent the interests of people living with chronic urticaria.


Allergy & Asthma Network

The mission of Allergy & Asthma Network is to end the needless death and suffering due to asthma, allergies and related conditions through outreach, education, advocacy and research. At Allergy & Asthma Network, works with national and local partners to train healthcare professionals and hosts events and screenings that reach people directly in their communities. They raise awareness and educate millions each year with easy-to-understand, medically reviewed resources in English and Spanish. The network advocates at the federal and state levels to improve access to care and affordable medications and works to ensure the patient voice is included in research and drug development.


Urticaire Chronique

A group of specialists and patients with chronic urticaria that aims to improve the health and quality of life of people dealing with this disease. This group is aiming to find ways to support the advancement of knowledge and research on chronic urticaria, search for relevant, updated information on chronic urticaria, validate it and make it available. Further, this oganization aims to influence decisions within the medical community, governments and other stakeholders, as well as raise awareness of this condition and inform and train medical staff so they can diagnose correctly and better refer patients to the specialists they need.


Asociación-Peruana de Pacientes con Urticaria

The Peruvian Association of Patients with Urticaria (APPU), has been formed by a group of patients with Chronic Urticaria to give guidance and support to other patients with this disease. Is a virtual place were patients can share their difficulties and insights, with a global aim of a better quality of life. For this we have a physician advisory board from Peruvian UCARE members.

Other GA²LEN Networks

Angioedema: ACARE

Anaphylaxis: ANACARE

Atopic Dermatitis: ADCARE