Aim: To identify knowledge, attitudes, perceptions, experiences and satisfaction about the use of Patient Reported Outcomes Measures (PROMs) by patients with chronic urticaria.
Project lead: Ivan Cherrez-Ojeda, Sophia Neisinger
Project advisor: Marcus Maurer
Steering committee: Marcus Maurer, Torsten Zuberbier, Ivan Cherrez-Ojeda, Sophia Neisinger
Status: Global Rollout
Number of participating centers: 50 (minimum)
Number of patients included: 400 (aim)
This project is still actively recruiting participants for this study. The deadline was extended to December 31st, 2023. Your participation is essential to the success of this project, and we appreciate your ongoing commitment.
You can find all project documents, as well as surveys in the UCARE member area.
Surveys are (so far) available in: Spanish, English, Polish, Persian, Thai, Arabic, Turkish, Russian, German, Portuguese
Please kindly note that the survey consists of two distinct options: the patient’s survey and the doctor’s survey. Therefore, if you have already completed the patient’s survey, please refresh the page and select the option for the doctor’s survey in order to complete that portion of the survey as well.
Furthermore, it is important to ensure that the same code is used in both the patient’s and doctor’s survey forms. This is necessary in order to accurately match the information provided during analysis. Thank you for your cooperation.
If you do not yet have access to the UCARE member area, please reach out to Emilia Zimmermann (emilia.zimmermannATga2len.berlin).
To learn more about this project, please get in touch with: Ivan Cherrez (ivancherrezATgmail.com) or Karla Robles (karlaroblesvelascoATgmail.com)