Therapies and their outcomes in patients with Solar Urticaria: The patients’ perspective
Aim: The aim of this study is to investigate therapeutic response of solar urticaria therapies from the patient’s perspective, as well as to better understand the clinical picture of solar urticaria and its impact on the quality of life of patients.
Background: Managing solar urticaria remains a challenge for physicians and patients. It is unclear which treatments are favored in a real-world setting, and what benefit patients experience from those treatments.
Study procedure: A questionnaire-based survey (see appendix) of patients with solar urticaria will be conducted. This is an anonymized online questionnaire in English or in local language, which is made available via SoSci Survey. The questionnaire contains 38 questions (the patient has the possibility to answer more questions at the end, if he/she wants to give more information about not asked therapies), which record the symptoms of the disease, the response to therapy, the quality of life as well as the severity of the disease from the patient’s point of view.
The study is aiming for 200 patients.
Status: Preparing for Global Rollout
If you are interested in this study, please reach out to Lea Alice Kiefer (lea-alice.kieferATcharite.de) and Manuel Fernando Lobo Pereira (manuel.pereiraATcharite.de)